Run4Hope, Hope4Harper

Date/Time

September 15, 2018
12:00 AM

Location

Andy Brown Park East View map

Description

Saturday, September 15, 7am registration, 8am 5K, 8:30am 1-mile fun run

Help raise funds for epilepsy research and awareness by joining Hope4Harper's annual fundraising event at Andy Brown Park East. Andy Brown Park is wide concrete trail that is wheelchair assessable by ramp. After the run, visit the vendor village for activities and prizes, including toy bugs and games at the ABC Pest Works sponsor booth.

The fundraising goal is 300 runners and $20,000, which will contribute to life-changing research for children to live a better quality of life with CDKL5 and epilepsy. The research Hope4Harper supports is helping millions of people worldwide. (A medical tent capable of handling emergencies will be on site at the event.)

Run4Hope is in memory of Harper Elle Howard, who was born in 2010 with a rare genetic disorder known as CDKL5 disorder and lost her battle on January 8, 2016. In 2012 Harper and family started the nonprofit Hope4Harper to educate, raise funds and support scientific research for the CDKL5 disorder and similar seizure related diseases and to help provide better quality of life while living through the disorder.

Worldwide there are fewer than 1,000 diagnosed cases of this rare, life-threatening genetic disorder. But one in 22 people around the world have epilepsy—so research to relieve seizures will help millions who suffer daily.

Harper's Legacy carries on hope through research. She was the first to leave her brain and matching tissue to CDKL5 research, a valuable gift that will be the key to ending seizures completely. Her cells are being researched at the University of California, San Diego.

Race-day registration: $45 for 5K; $35 for 1-mile; $35 for family pack for four or more.
214/529-6952
hope4harper.com/run-4-hope
Email hope@hope4harper.com for any questions or comments.